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已发表论文
青少年特发性脊柱侧弯患者家庭照顾者在代理决策以获取经济支持方面的障碍与促进因素：基于 COM-B 模型的定性研究
Authors Liu S, Hu K, Rui H, Gao Y, Zhan X
Received 26 May 2025
Accepted for publication 19 September 2025
Published 25 September 2025 Volume 2025:19 Pages 3001—3011
DOI https://doi.org/10.2147/PPA.S538568
Checked for plagiarism Yes
Review by Single anonymous peer review
Peer reviewer comments 2
Editor who approved publication: Professor Qizhi (Cathy) Yao
Sihui Liu,1 Kaili Hu,2 Huazhen Rui,2 Yi Gao,3 Xue Zhan2
1Department of Research, Tongji Hospital, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, People’s Republic of China; 2Department of Nursing, Tongji Hospital, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, People’s Republic of China; 3Department of Thoracic, Tongji Hospital, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, People’s Republic of China
Correspondence: Xue Zhan, Tongji Hospital, Tongji Medical College, Huazhong University of Science and Technology, No. 1095 Jiefang Avenue, Hankou, Wuhan, 430030, People’s Republic of China, Email 46113492@qq.com
Purpose: This study aimed to explore the barriers and facilitators faced by family caregivers in proxy decision-Making for financial support in patients with adolescent idiopathic scoliosis (AIS).
Patients and Methods: This qualitative study utilized the Capability, Opportunity, Motivation-Behavior (COM-B) model to examine the factors that influence family caregivers’ proxy decision-Making regarding financial support for patients with AIS. Eighteen caregivers were interviewed using semi-structured interviews. The data were analyzed using MAXQDA software and Braun and Clarke’s thematic analysis.
Results: The key facilitators identified included financial relief, trust in the legitimacy and reputation of charitable organizations, and family and social support. Barriers included lack of knowledge and practical skills, emotional and physical exhaustion, privacy concerns, particularly related to the patient’s future educational opportunities, and the complexity of application procedures.
Conclusion: This study underscores the importance of addressing the barriers caregivers face, such as complex application processes and emotional stress, while enhancing facilitators like financial support and trust in organizations. Streamlining application procedures and improving transparency can enhance caregivers’ ability to access financial resources, benefiting both patients and their families.
Keywords: adolescent idiopathic scoliosis, caregivers, proxy decision-making, COM-B model, qualitative research
1Department of Research, Tongji Hospital, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, People’s Republic of China; 2Department of Nursing, Tongji Hospital, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, People’s Republic of China; 3Department of Thoracic, Tongji Hospital, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, People’s Republic of China
Correspondence: Xue Zhan, Tongji Hospital, Tongji Medical College, Huazhong University of Science and Technology, No. 1095 Jiefang Avenue, Hankou, Wuhan, 430030, People’s Republic of China, Email 46113492@qq.com
Purpose: This study aimed to explore the barriers and facilitators faced by family caregivers in proxy decision-Making for financial support in patients with adolescent idiopathic scoliosis (AIS).
Patients and Methods: This qualitative study utilized the Capability, Opportunity, Motivation-Behavior (COM-B) model to examine the factors that influence family caregivers’ proxy decision-Making regarding financial support for patients with AIS. Eighteen caregivers were interviewed using semi-structured interviews. The data were analyzed using MAXQDA software and Braun and Clarke’s thematic analysis.
Results: The key facilitators identified included financial relief, trust in the legitimacy and reputation of charitable organizations, and family and social support. Barriers included lack of knowledge and practical skills, emotional and physical exhaustion, privacy concerns, particularly related to the patient’s future educational opportunities, and the complexity of application procedures.
Conclusion: This study underscores the importance of addressing the barriers caregivers face, such as complex application processes and emotional stress, while enhancing facilitators like financial support and trust in organizations. Streamlining application procedures and improving transparency can enhance caregivers’ ability to access financial resources, benefiting both patients and their families.
Keywords: adolescent idiopathic scoliosis, caregivers, proxy decision-making, COM-B model, qualitative research